Registry Manager (Bronchiectasis)
Job No:
118434
Location:
Melbourne
- Do you have a background in Data Management and experience using REDCap? Join a well-established Australian NFP!
- Enjoy an attractive remuneration circa $94,000 PLUS super, salary sacrificing options and FBT concessions!
- Pivotal position contributing to the ongoing success and national growth of a vital research platform!
About the Organisation
Lung Foundation Australia is a national, not-for-profit organisation with offices around Australia. Their vision is to ensure that lung health is a priority for all in Australia and to promote lung health by:
- Educating the community in lung health and early detection of lung disease;
- Reducing the burden of lung disease in the community through patient and carer support;
- Influencing public policy, through advocacy across all levels of government; and
- Raising funds for medical and scientific research.
The Lung Foundation Australia nationally employs about 30 professional/administrative staff, supported by a team of dedicated volunteers.
About the Australian Bronchiectasis Registry
Bronchiectasis is caused by chronic infection of the airways. There is currently no cure for this condition, and due to the large geographic distances in Australia, collaborative studies in bronchiectasis have traditionally been considered impractical, and there is little information available on the disease’s incidence, diagnosis or mortality rates in Australasia.
Lung Foundation Australia is working to fill this gap and improve the quality of life and outcomes for children and adults living with bronchiectasis by investigating the cause, treatments and quality of care through the Australian Bronchiectasis Registry.
Launched in collaboration with Australasian Bronchiectasis Consortium (ABC) in 2015, the Registry provides a platform to study the epidemiology of bronchiectasis and create opportunities for collaborative clinical research within Australia, also working collaboratively with international registries like the European Multicentre Bronchiectasis Audit and Research Collaboration (EMBARC) to leverage knowledge, expertise, protocols and ideas that will help to optimise research outcomes.
For more information about the Registry please click here.
About the Opportunity
Lung Foundation Australia now has an opportunity for a passionate and motivated Registry Manager to join their dedicated team in Melbourne on a full-time basis.
Reporting to the General Manager (Clinical Programs, Research, and Innovation), this position is responsible for leading the strategic development, implementation and day-to-day operations of the Registry.
You will be working directly with the Australasian Bronchiectasis Consortium Steering Committee and the representatives (Principal Investigators) at each Registry site to achieve and advance strategic objectives. An example of responsibilities include:
- Registry data management and quality reporting;
- Maintenance of the Registry Data Dictionary (including ethics);
- Supporting PIs and users through the provision of training;
- Advising / assisting ABR site PIs in relation to ethics; and
- Liaising with international registry partners and stakeholders to ensure a consistent approach / methodology to implementing bronchiectasis registries.
To view a full position description, please click here.
About You
Lung Foundation Australia is looking for a highly skilled individual with advanced skills in data management and analysis and extensive experience in REDCap, preferably at an administrator level.
You will be committed to developing meaningful and productive relationships with stakeholders and able to use these skills to achieve the objectives of the Registry and Lung Foundation Australia in achieving positive outcomes for people living with or impacted by lung disease.
In addition, you will have advanced project management skills and experience in strategy implementation.
Prior experience in the health industry will be highly regarded, but is not essential.
Day to day you will be working in a predominantly independent manner day to day and as such, you must be a self-starter with strong initiative and understanding of process. However, it is equally important that you be an effective team player who brings a positive approach to collaboration and can provide support and mentorship to peers.
Please note: A National Police Check and Blue Card are requirements of this position.
About the Benefits
This is an incredibly exciting opportunity for an experienced professional to support research that could change the lives of many children and adults living with bronchiectasis. If you're passionate about improving lung health around the country, providing hope for prevention or a cure, this is the perfect role for you.
Upon joining Lung Foundation Australia, you'll be welcomed into a supportive and close-knit management team based in the Lung Foundation Australia office in South Melbourne.
In return for your hard work and dedication, you'll be provided with a highly attractive remuneration circa $94,000 plus super, salary sacrificing options and FBT concessions!
In addition, Lung Foundation Australia understands the importance of, and is committed to, the ongoing development of their team members. As such, you'll enjoy great paid training opportunities in order to expand upon your current knowledge and help drive the organisation forward.
If you're looking for a new challenge, take on this unique position with a passionate NFP organisation - Apply Now!